Showing posts with label memory. Show all posts
Showing posts with label memory. Show all posts

Saturday, October 23, 2010

Caring for a Person with Memory Loss Conference Dec 4th,2010 Minnesota

October 20, 2010 by Alzheimer's Speaks

Caring for a Person with Memory Loss Conference

Dec 4th, 2010? at University of? Minnesota

by Lori Lori La Bey of Alzheimer’s Speaks and Senior Lifestyle Trends

Once again Dr Joseph E.Gaugler of the University of Minnesota is providing a free educational Conference for Caregivers.? Kudos to Dr Gaugler and his team for providing such a great conference and service!?

I am excited?to?share the stage with the following professionals sat this conference.

End of Life Care in Memory Loss
James Pacala, MDMedical and Medication Management in Memory Loss
Teresa McCarthy, MDEssential Documents in Long-Term Care
Kris Maser, JD and Mary Frances Price, JDHow to Pay for Long-Term Care
Kris Maser, JD and Mary Frances Price, JDFinding the Positive in Memory Loss
Lori La Bey, CSA, Speaker, Trainer, Author

Here are the details and registration information - Click on the brochure to enlarge

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Thursday, October 7, 2010

The Dance and Memory Walk

The Sedalia Memory Walk was Saturday and the sea of purple shirts showed our community support for loved ones with Alzheimer’s. Our Memory Walk was fun with a cake walk, Don the Balloon Man, refreshments, door prizes, raffle items, and dance routines by the young ladies from Center Stage Academy. Smiles and hugs made the rounds as we connected with others who had walked a mile in similar shoes, helping lighten each other’s load for the journeys we shared.

“Do you remember me?” a lady asked. “I worked at Four Seasons Living Center when Jim was there.” Jim was at Four Seasons four years and although her face looked familiar, I couldn’t come up with her name. “I’m Pat,” she said. “My husband wound up in the same room Jim had in the Alzheimer’s unit.”


“I remember you were having problems with your husband. I’m sorry to hear he had Alzheimer’s.”


“Yeah,” Pat said, “one day the staff found him standing on top of the sink.”


I had to laugh about that one. “Well, Jim did a lot of things, but he never did that!”


“You know, you just have to remember the funny things that happened,” she said. I agreed. It is much better to remember the times we smiled than to think about the distressing times.


Just before we began the walk, our master of ceremonies, Terry Kelley, sang “The Dance,” and I walked up to take a picture of him. The song was so touching, I gave Terry a hug. The tears started flowing because the words of that song are so true for me and for millions of caregivers.


My cousin Reta had taken a picture too, and she pulled me into a big bear hug. Connie Pope from Fair View hugged me too and said, “Are you all right.”


I think through the boo-hooing I let her know I was. “It’s that song,” I said.


Connie said, “Look around, Linda. See all these people here today? They wouldn’t be here if it hadn’t been for you and Jim. You are the one that started this whole thing.” I may have started it, but Fair View has been at every Memory Walk since the first one I coordinated in 1999.


The teams were introduced, then Memory Walk Coordinator Sheila Ream and I carried the Memory Walk banner and led our walkers down Memory Lane toward the fairgrounds. Sheila handed off the banner to her son Phillip who has helped us throughout the year. As we rounded the corner and saw the long line of walkers behind us, Phillip said, “I’ve looked forward to this all year.”


While the prizes were being announced, we handed out purple and white balloons for the balloon release. We used a marker to write our loved one’s names on the balloons. I put Jim’s name in a heart and wrote “To heaven with love.” I tied the balloon onto a basket handle, and while I signed a book, Jim’s balloon broke away and raced toward the sky.


That afternoon, after a leisurely soak in the bathtub, I put on PJs and settled in for the rest of the day. I got to spend the evening with my two youngest grandkids. My three-year-old grandson played with his race cars, and shouted, “Start your engines!” Before when he played, he called his driver Josh, after a relative he has seen race, but after the Memory Walk, he said the driver was Jim.


As our grandson played with his cars, I couldn’t help but think how much Jim enjoyed his grandkids. Jim never got to meet the three-year-old that often talks about “Grandpa Jim” and even pictures his grandpa as the tiny driver in his racing game.


Jim and I parented two wonderful sons. Our four fantastic grandchildren bring so much joy to my life. When I look at my sons and my grandkids, I know it is best that I never knew the heartbreak early onset dementia would bring to our family. I’ve been blessed with love, and the pain diminishes when compared to the dance that forever lives in my memories.


Copyright September 2010 L. S. Fisher
http://earlyonset.blogspot.com/


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Wednesday, October 6, 2010

Memory screening can be a good thing, but not for everyone

November is National Alzheimer's Disease Awareness Month, initiated by the Alzheimer's Foundation of America in 2003.


One of the events is National Memory Screening Day, Nov. 17. ?Some of you may have noticed various screening day campaigns in your area. Screenings often take place on senior campuses, long term care facilities or local retail businesses. To check screening sites in your area go to http://www.afascreenings.org/.


Regardless of whether you were to pursue a screening this week or another time, consider a few things. While screenings can be a good thing, widespread screenings for anyone who is not showing symptoms are not unanimously endorsed. The U.S. Preventive Services Task Force issued a statement in 2003 that there was insufficient evidence for or against the screening of older adults.


The American Academy of Neurology recommends screening only when dementia is suspected. One of the main reasons against screening for everyone is that they result in a lot of false positives. In addition, many sources indicate that when a screening indicates a concern, many people never take the information to their doctor for further evaluation.


Yet, a community-wide memory screening can be a helpful first step for families if they are seeing signs of memory problems. The screening is relatively simple, accessible, and takes little time. It may help persons with memory concerns or their partners learn more about dementia and can be a good first step toward early diagnosis.


In general, we can all decide for ourselves if we want to participate in a community based memory screening given our own circumstances. If physicians and patients have a long standing relationship, memory problems usually get noticed in the office. The most important thing if you suspect memory changes is to see your doctor early and discuss your specific concerns.


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Monday, October 4, 2010

Alzheimer's: Taking action gives hope for those with memory loss

For two weeks last month, I spent several hours a day with 13 persons living with mild cognitive impairment or early stage dementia and their care partners, in a program called HABIT (Healthy Actions to Benefit Independence and Thinking).

The 10-day program involves daily cognitive compensation training, brain fitness activities, support groups, wellness education, and a fitness/movement program. HABIT builds on the strength that persons with mild memory problems often retain the ability to learn new habits.

These specific "habits" — if practiced consistently — may help compensate for memory loss, possibly extending independence and improving self efficacy. I'll write more about HABIT in an upcoming blog. For general information, visit the resources tab on this page.

The 26 individuals who participated in HABIT last month shared some common reasons for doing so. First, they believed that an early diagnosis doesn't help much if you don't understand what it means or what to do. They came with many questions and uncertainties about their diagnosis. Second, they were committed to doing something to make the situation better. Taking action gave them hope.

It's difficult to describe what transpired in the two weeks and almost fifty hours we spent together, but clearly relationships grew and genuine bonds were made. Many faced for the first time the challenging step of accepting their diagnosis or that of their loved one. Care partners began the process of adapting to a new "normal" and although not easy, found immeasurable comfort in one another.

Some began to look at what may lie ahead with both a sense of empowerment and an appreciation for living fully in the present. Persons with memory loss gained a renewed sense that they're individuals with rich experiences, accomplishments, and spirit, and that a diagnosis of memory loss doesn't take that away.

I'm sure my words can't fully capture the experience for these individuals or the profound wisdom they offered me or one another. Nevertheless, I'll conclude with some of their words that will stay in my heart for a very long time.

"I am now open to our new life and prepared emotionally to move forward." — Spouse of someone with mild cognitive impairment

"The disease has given me the gift of loving my husband all over again." — Spouse of someone with mild cognitive impairment

"I find Alzheimer's so freeing, you don't have to remember yesterday or tomorrow, you just live today." — Person with early stage dementia

For more information on HABIT, please email customerservice@mayoclinic.com.

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